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attention attention…this is the INSAR 2023 summary

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Last week in Stockholm, Sweden, 2200 researchers and scientists working to understand and help those on the spectrum, met to share their most recent findings and exchange ideas. What were the main takeaways as ASF saw them? We cover why some autistic people don’t want genetics to be studied, how to better engage families with IDD and who are non-speaking, females, adults, international studies and yes, diversity. The program book was released a day before the meeting and can be found here: https://cdn.ymaws.com/www.autism-insar.org/resource/resmgr/docs/annualmeeting/insar2023_program_book.pdf

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The 2021 INSAR quickie

This year’s annual meeting of autism researchers, INSAR, was virtual. But it didn’t stop hundreds of scientists from gathering online to discuss their viewpoints, findings, and the meaning for autism research to families. This week’s podcast captures some of the highlights, at least some of them, in a 30 minute talk. Some of the findings haven’t been peer reviewed, so they should be considered interesting-on-the-horizon discoveries that you should be excited about, but not to be taken as the gospel truth.

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Getting Autistic People to Work

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This week’s podcast is dedicated to the recently released INSAR – supported employment policy brief.  This was a 2 year project by ASF, Stony Brook, University, Karolinska Institute in Sweden and Curtin University in Australia to provide a cross-cultural perspective on getting autistic people who want to work, employed, and stay employed.  Thank you to all the participants in the surveys, community meetings, and GoldNFish for putting together a document that is not just informative, but fun to read.

 

Click to access 2018-insar_policy_brief.pdf

Work and study

 

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What is happening in research around employment for people with ASD?

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This week, Melissa Scott from Curtin University, a partner in the international policy brief on employment for people with autism, discusses the first paper out of this collaboration:  a scoping review of the existing research out there on employment practices.  Surprisingly, there was one crucial element missing as a focus in all the intervention studies  –  the environment.  Dr. Scott discusses what else was learned from this scoping review, and how the findings can help people with autism not just obtain, but maintain employment, through constructive policy.   ASF is a proud partner on this policy brief, and Curtin University has been an amazing collaborator.

https://www.ncbi.nlm.nih.gov/pubmed/30073870

 

 

 

 

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A sampling of science from the International Meeting of Autism Research

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In case you didn’t have time to jump on a plane and fly to the Netherlands last week for the International Society of Autism Research meeting, this week’s podcast is a short summary of just a few of the presentations.  There was more of an emphasis on what has been called “real life” research questions like employment, quality of life, and relationships.  As a result, some of the more basic science questions around autism are now being presented at other meetings.  This is a shame.   This podcast follows some of those basic science questions to the now translational opportunities that were presented at the meeting.  It also highlights some newer findings that will provide help to people at all ages who need supports and services.

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What does Labor Day mean for people with ASD?

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Labor Day is a time to appreciate and honor all those people who work to make this world a better place.  People with autism do that, but they also want to get paid and be employed just like anyone else.  This Labor Day, the podcast summarizes challenges to studying employment in people with ASD, what we know, and what is being done in a collaboration between ASF, Curtin University in Australia, the Karolinska Institute and Stony Brook University in Long Island. This is the INSAR supported policy brief project that will be completed next year, but you will all be receiving a request to fill out a survey about employment in the coming weeks.  In addition, what does employment mean for people with autism?  A NY Times article recently highlighted the journey from childhood to adulthood and what having a job means.