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Hybrid is Most Helpful

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This year’s first podcast dedicated to COVID issues explores both caregiver and clinician satisfaction with telehealth. New studies explore this satisfaction with assessment as well as psychiatric interventions. Also, as a follow up to the INSAR presentations on resiliency in mental health, a new study from Canada explains what may be at the core of this resiliency. Finally – why are some autistic people still not getting vaccinated?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9126276/

https://pubmed.ncbi.nlm.nih.gov/35579789/

https://pubmed.ncbi.nlm.nih.gov/35575840/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9088649/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9023320/

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How the Pandemic Affected Parents

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You have heard a lot about how the pandemic affected those with a diagnosis – and it isn’t good. Recent studies have turned their attention to stress and anxiety and depression of caregivers during the pandemic. It was higher in those parents with children of a neurodevelopmental disorder, but it was also complicated, related to the functioning of the child and of course, when the questions were asked. Some used a “pre vs. during” pandemic design and some used a case-control design. But altogether, you can learn about the variation across families and across the world on this week’s #ASFpodcast.

https://pubmed.ncbi.nlm.nih.gov/34591373/

https://pubmed.ncbi.nlm.nih.gov/34591364/

https://pubmed.ncbi.nlm.nih.gov/34657487/

https://pubmed.ncbi.nlm.nih.gov/34776249/

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Scientists: they are just like us. They are in a pandemic crisis too

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Scientists who help families affected by ASD may look like they have it all together, but the pandemic has been catastrophic not just on discoveries to help families, but to the people who conduct research, meet with families, and provide services. They have lives too, and those lives have interrupted their abilities to provide care and work towards easing suffering. This week’s podcast is a conversation between 3 early career investigators who helped conduct a survey of the common struggles, obstacles, and possible solutions to this problem.

https://autismsciencefoundation.org/wp-content/uploads/2021/03/ASF-ECR-Commentary-20211.pdf

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More on why intellectual disability matters.

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There have been more than a few podcasts lately about why intellectual abilities (or disability) are important in understanding ASD. It will probably be a theme in the end of year summary. This week, intellectual ability affects risk of dying from COVID and how anxiety is measured. Some studies show that increasing cognitive ability increases chances of having anxiety, although, because it is not always measured appropriately in those with intellectual disability, this linear relationship may not hold. However, while it is important in anxiety and COVID, it may have less to do with how pain is expressed. Podcast links below:

If you want to register for the December 9thwebinar about the COVID Vaccine:  

https://www.chop.edu/centers-programs/vaccine-update/vaccine-webinar-series

Developmental disorders top the medical conditions that heighten the risk of dying from Covid-19

https://pubmed.ncbi.nlm.nih.gov/33198481/

https://pubmed.ncbi.nlm.nih.gov/33175317/

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How you doin’?

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We are now about 8 months into the pandemic and the effects of social distancing. How are families doing? What are scientists doing to understand the effects and ways to help families in the future? This podcast describes four international studies that addressed what families were experiencing and how they were coping. A list of references is below:

https://www.mdpi.com/2077-0383/9/9/2937/htm

https://pubmed.ncbi.nlm.nih.gov/32899799/

https://pubmed.ncbi.nlm.nih.gov/32503172/

https://pubmed.ncbi.nlm.nih.gov/32808424/

https://pubmed.ncbi.nlm.nih.gov/32939917/

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A special episode on the Autism Dad podcast

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On this week’s podcast, CSO Alycia Halladay appears on the Autism Dad Podcast, hosted by Rob Gorski. While we have included the full podcast here, you should also go over to the Autism Dad podcast – he’s smart, funny and has 3 adorable boys with ASD. Rob talks openly and honestly about not just scientific issues, but everyday challenges and successes that is inspirational for families across the spectrum. You can find him on the regular podcast streams or here: https://www.theautismdad.com/listen/