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What’s the latest on minocycline for autism?

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This week’s podcast re-explores a question about a potential therapy for autism – minocycline. Minocycline is an antibiotic used to treat a number of different infections and some anecdotal reports have linked it to an improvement of autism. This has led to some experimental trials on minocycline, with inconclusive results. This week, a multisite study showed NO effects of minocycline for autism features or outcomes, but that doesn’t mean it is NOT a great antibotic. If you need it, use it! Also, do autistic people spend too much time on their screens? Well, they seem to spend more time on devices and screens, but it might all be bad. Listen to the podcast for more information on this.

https://link.springer.com/article/10.1007/s10803-023-06132-1

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10709772/?report=printable

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Support for Siblings during COVID

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Everyone needed support during the pandemic, but families affected by autismneeded special support. This included siblings. Researchers at Massachusetts General Hospital tried out an intervention around stress and anxiety reduction in siblings in 2020. Not only was it liked, it worked. It didn’t completely eliminate stress and anxiety, nothing would, but it did help siblings manage a little better. Can it work outside the pandemic? There are certainly other situations where siblings could use a little more support.

https://pubmed.ncbi.nlm.nih.gov/36460184/

https://link.springer.com/article/10.1007/s10803-022-05500-7

https://onlinelibrary.wiley.com/doi/10.1002/aur.2987

https://onlinelibrary.wiley.com/doi/10.1002/aur.2987#aur2987-bib-0032

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Can we solve the pandemic problems around diagnosis and intervention?

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This week’s #ASFpodcast highlights a few articles from the Journal of Autism and Developmental Disorders this week which examined the tolerability and efficacy of online diagnostic procedures and interventions, from the perspective of both parents and clinicians. They seem to work about the same, although there were some caveats. For many reasons, online and telehealth options are here to stay, and more needs to be done to improve their accuracy, acceptability, feasibility and effectiveness. These early studies are promising though, and lead the way to even more improvements to help make them a viable option for families in the future.

https://link.springer.com/article/10.1007/s10803-022-05435-z

https://link.springer.com/article/10.1007/s10803-022-05576-1

https://link.springer.com/article/10.1007/s10803-022-05554-7

https://link.springer.com/article/10.1007/s10803-022-05580-5https://link.springer.com/article/10.1007/s10803-022-05607-x

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Hybrid is Most Helpful

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This year’s first podcast dedicated to COVID issues explores both caregiver and clinician satisfaction with telehealth. New studies explore this satisfaction with assessment as well as psychiatric interventions. Also, as a follow up to the INSAR presentations on resiliency in mental health, a new study from Canada explains what may be at the core of this resiliency. Finally – why are some autistic people still not getting vaccinated?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9126276/

https://pubmed.ncbi.nlm.nih.gov/35579789/

https://pubmed.ncbi.nlm.nih.gov/35575840/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9088649/

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9023320/

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What I like about you.

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This week is a “brick-a-brack”: of topics. They include: 1. how COVID-19 is especially dangerous for people with neurodevelopmental disorders; 2. how certain genes associated with neurodevelopmental disorders can affect other body functions other than the brain (like the digestive system and kidney function and metabolism); and finally, 3. why parents think their autistic children are so great. No overall theme, just information we hope you can use.

https://www.ijidonline.com/action/showPdf?pii=S1201-9712%2822%2900048-0

https://link.springer.com/content/pdf/10.1007/s10803-021-05405-x.pdf

https://jamanetwork.com/journals/jamapsychiatry/article-abstract/2788262

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How the Pandemic Affected Parents

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You have heard a lot about how the pandemic affected those with a diagnosis – and it isn’t good. Recent studies have turned their attention to stress and anxiety and depression of caregivers during the pandemic. It was higher in those parents with children of a neurodevelopmental disorder, but it was also complicated, related to the functioning of the child and of course, when the questions were asked. Some used a “pre vs. during” pandemic design and some used a case-control design. But altogether, you can learn about the variation across families and across the world on this week’s #ASFpodcast.

https://pubmed.ncbi.nlm.nih.gov/34591373/

https://pubmed.ncbi.nlm.nih.gov/34591364/

https://pubmed.ncbi.nlm.nih.gov/34657487/

https://pubmed.ncbi.nlm.nih.gov/34776249/

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Food Insecurity and COVID for families with ASD

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Food insecurity during the pandemic is affecting us all, but even before the pandemic it was a greater problem in families affected by ASD. Now, during the pandemic and restrictions in access to food, food programs at schools and unemployment, it’s an even bigger problem. Dr. Arun Kapur from Autism Speaks describes his study examining the rates of food insecurity before and during the pandemic, and a study by Purdue University ties those insecurities to problem behavior in children and adults with ASD. This is a problem we can work on solving together, and society needs to have a better fallback for these basic needs.

https://pubmed.ncbi.nlm.nih.gov/34147945/

https://pubmed.ncbi.nlm.nih.gov/34075809/

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Why would you not get vaccinated?

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There have been a lot of questions about the safety of the COVID-19 vaccine, especially now that it is being offered to everyone 12 and up. At first it was restricted to the elderly, now other groups are eligible. But not everyone wants the vaccine and in fact about 30% of Americans either refuse or have serious questions about it. On this week’s ASF podcast, we interview Dr. Pam Feliciano of SPARK to find out what families affected with ASD think of the vaccine, and answer other questions around the safety of the vaccine vs. the risks of getting COVID. Below is a new article about mortality of COVID in people with ASD.

https://link.springer.com/content/pdf/10.1007/s10803-021-05100-x.pdf

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The 2021 Day of Learning Quickie

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If you missed this year’s Day of Learning, the videos will be up soon. But if you are a podcast listener, you can listen a 20 minute recap on this week’s podcast. The topics included the effects of the pandemic on family functioning and clinician diagnosis and assessments, lessons learned through the pandemic, the role of the social justice movement in autism, personalized medicine, an explanation of SUDEP, short for sudden unexplained death in epilepsy, and new information on CBD or cannabidiol. It’s not a substitute for watching it live and being able to ask questions of the speakers, but it touches on the main themes.

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Scientists: they are just like us. They are in a pandemic crisis too

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Scientists who help families affected by ASD may look like they have it all together, but the pandemic has been catastrophic not just on discoveries to help families, but to the people who conduct research, meet with families, and provide services. They have lives too, and those lives have interrupted their abilities to provide care and work towards easing suffering. This week’s podcast is a conversation between 3 early career investigators who helped conduct a survey of the common struggles, obstacles, and possible solutions to this problem.

https://autismsciencefoundation.org/wp-content/uploads/2021/03/ASF-ECR-Commentary-20211.pdf