Advice for better understanding underrepresented groups in autism research

This week, we talk to Karla Rivera-Figueroa and Inge-Marie Eigsti, who together with Nana Yaa A. Marfo published a systematic review asking about parental perceptions of autism in both LatinX and Black Sociocultural contexts. Six themes popped out, and the question for Karla and Dr Eigsti were “how can research help”? What funding opportunities, culturally relevant materials, and future research directions need to be focused on? The conversation included ways to battle stigma, improve provider relationships, recruit a more diverse sample in research and fund those underrepresented scientists who want to study autism. As a note, ASF will be releasing their undergraduate fellowship mechanism on Tuesday which will focus on underrepresented groups.

https://pubmed.ncbi.nlm.nih.gov/34979034/

Super siblings!

This podcast is dedicated to siblings of people with autism who are typically developing.  They play an important and beneficial role in development of socialization of those with ASD.  But sadly, they also have issues of their own, such as a high rate of issues like anxiety and depression.  Those siblings may be genetic carries of a specific mutation and not have an autism diagnosis, but have increased risk for schizophrenia and cognitive disability.  Finally, just because they are considered “typically developing” doesn’t mean they don’t have challenges with adaptive behavior.  However, they have a very special relationship with their brothers and sisters, and the world needs these strong advocates for the community.

 

https://www.ncbi.nlm.nih.gov/pubmed/30280363

https://www.ncbi.nlm.nih.gov/pubmed/30248583

https://onlinelibrary.wiley.com/doi/full/10.1111/jcpp.12985

Click to access s41436-018-0266-3.pdf